Thursday, November 20, 2008

The Walk.

There are few things that scare me. I am not afraid of bugs, spiders, rats or mice. I have no issues with heights, small places, or elevators. I use to think that there would never be something I couldn't conquer. I stand corrected. In this life there is a perfect plan for each of us, we are taught that our entire childhood. Things happen for a reason, there is a reason for everything. Then we are thrown a senseless, reasonless curve ball and we crumble. How do you justify the unjustifiable? How do you learn to see the good in things that are so unfair? How do you crawl while those around you run? The answer... You just do. What other choice is there but to continue? The walk is alone, there are few who can understand the emotional toll that is can take on you. The physical exhaustion. The endless guilt. The effort involved in even taking a breath. The soul crushing disappointment. When the waves of these emotions crash in there is only one thing that keeps you afloat, moving and pushing forward and that is the love of your child. No one can love them like you do. No one know them like you do. No one can take that from you. They are the reason that you walk. Alone or not. They are the journey. Finding him is the reason.

Monday, November 17, 2008

The Guilt.

It can literally consume you. It encapsulates you, swallows you whole, spits you out and convinces you that you are the worst Mother ever. It berates you, reminds you with every birthday party and every family event that your child is not normal and therefore is unwanted. It eats away at your self esteem, your self control, and your soul until you are desperate for answers and so physically exhausted you cannot take another step but when you lay your head to your pillow you dream of the time before. The moments that you cling to before the change, when your family made sense. Before the introduction of words you cannot understand.It starts with the public in general, as you lose control of your child and the world watches. There are stares, there are comments, there are excuses to why your child isn't invited. They are slowly deprived of the childhoods we remember, the good times we recall, the fun we had and we despair. What did I do? Resounds loud and clear in our heads, almost in time with our heartbeats. It beats louder and stronger with every friend that stops calling, every play date that is cancelled, every family member that asks that you don't bring your child along. What did I do... What did I do...What did I do...

Wednesday, November 12, 2008

The Impotence

There is a feeling of impotence when you share your children. The resounding change of gears they go through as they move into their other family, the one that you are not apart of. You can have the grandest endeavours or the best laid plans, once they leave your custody all of those intentions are no longer your call. They are the call of the other parent, the weekend parent. You cannot force your will for your children on the other parent. You walk a fine line with this person,this former partner turned enemy. Irregardless of who left, the children remain and for them you remain silent. I have no idea why I expect things after marriage that I didn't get during it. Yet I find myself hoping against hope that he will want to try and make things consistent and fair, try and find a balance we can both live with. The reality of the situation is being the hero is more important than doing what is right. Pancakes and Chinese food more important than the reality that these kids need more than that. They need more than someone who would teach them to lie to their mother and sneak things behind her back, damage their already strained systems and plummet them straight back into the frustrating life that I daily struggle to keep them from. It is as simple as the phrase you are what you eat. I watch them come home dizzy, with headaches, sore tummies and the frenzies, all of which are directly caused by them straying from the only thing that links all their behaviors. Their diet. I would love to their hero, I would love to lavish them with all the good things the other kids eat, I would love to bake a cake everyday. Instead I bear the brunt of their anger, talk them through their cravings and try to remember that I cannot be their hero because I am their Mother.

Sunday, November 9, 2008

Friday, November 7, 2008

The Ex.

We had nothing to say to each other. It was that bad. We lived in the same house, slept in the same bed, shared 3 people who had our DNA floating around inside of them. Yet here we were away from all that and we didn't have a thing to say to each other. I remember the feeling of resentment, it bubbled in my chest like acid reflux disease, choking me and burning the inside of my throat, restricting any possible conversation we could have had. I should have said the things that needed to be said, I should have given that to him. I should have told him how unfair it was that he had a career and I was still working at a dead end job, I should have told him I resented all the meeting he missed for Liam, the time he was gone for soccer, the time he was gone for coaching. I should have told him that I was tired of him still being allowed to be himself while I was sacrificed for the kids, for Liam. I should have told him about the phone call, the call I received during Liam's diagnosis telling me that he was seeing another girl and she was convincing him to leave me. I should have told him all of these things, but instead I sat in the same numbing pain I had shrouded myself in since my daughter was born a year before. I stopped fighting him, stopped begging him, stopped wanting him and inevitably stopped loving him. We split, he left, I was already gone. I continued to live in the home we had shared and changed it daily to remind myself that I was on my own. I went to counselling to deal with some depression. Some guilt issues I had with having a child with special needs and continued on fighting for Liam. I started jogging and eating better, I lost 30 pounds in 2 months. I went to my 10 year reunion alone, and had a great time. I read a lot, I cried a lot, I thought a lot. It was a great summer. I emerged better and stronger and continued the journey to the recovery. My recovery from Autism. My ex will always be my kid's Dad. I will be my kid's Mom. They know we both love them and that they are forever the tie that binds their parents.

Thursday, November 6, 2008

The Juicer.

One of the things that really hits my kids hard is sugar. It is like a hit of Coke for my boys and they are unable to process it properly, this results in the immediate crazies followed closely by a sugar-coma. They experience repetitive behaviors like tapping or drumming and speak extra loudly. They fight and bug each other and someone ends up crying. You cannot negotiate with them or make them see reason. They are just too high to figure it out. During their cleanse I cut out all fruit juice, although the labels may say sugar free this is not always correct. The kid's were receiving a nice glass of ice water with their breakfast and this resulted in some protest. Jake was elected by the group to talk to me about the tierney of this decision and the compromise was reached that I would purchase them a juicer so I could keep track of what was in the juice. Patting myself on the back for such quick thinking I began the task of locating a juicer that would not bankrupt us! What the hell! Is there a shortage of these things or something! I will not spend 100 bux on a juicer! During a chat with my Mom she produced a juicer that had been living on a shelf in the laundry room of their house for some time and I jumped at the chance! Home I went, picked up kids from various day cares and we went home to juice. Interesting that the juice companies would have us believe that they add nothing to their product, but I have to tell you fresh juice is NOTHING like the juice you buy. The juicer is pulp free and works well, but the juice is different, watery and lighter tasting. I made an orange-pineapple blend for breakfast and they drank it and loved it, which is what happens when you deprive someone of something for long enough! It took 8 oranges and 1 pineapple to make a pitcher of juice, those are the big oranges not the little one either! I was impressed by how easy it was, although messy, and I liked the juice too. So I will continue to juice for the kids and monitor the natural sugars in the fruit. Another round goes to Mom!

The Stats.

I am 29 years old with 3 kids. Jake, 9, Liam, 6, and Avery ,3. The interesting thing about this little group is I cannot imagine my life without each of them. They bring to my life such immense contentment and a love I have yet to find again. Each time they lifted the slimy, gooey baby onto my belly I fell in love. Hopelessly and spell blindingly in love. I would lift this tiny creature, who had resided inside of my very body, to my face and gaze at the wonder of their perfection. They had all of their toes and fingers and they had little lungs and little parts. I couldn't help it, they were mine and at my young ages of 20,22 and 26 I still remember thinking that this was a love like none other. I am first and foremost my kid's Mom and I fight I knew, even then, I would fight like hell if someone tried to harm them.

Years later I recalled the scene in the hospital room as I sat on the floor of parking garage and listened to my 2 year old son scream inside the car. I had just received Liam's diagnosis of moderate to severe Autism and I didn't have the strength to fight him into his car seat. I had left the clinic and made my way back to the car, tears streaming down my face . I put him inside and closed the door and sunk to the ground and sobbed. Autism is a life sentence, it is incurable and untreatable, this is what I was told, you can do your best to help him cope with it but it is unknown how well he will do, if he has any success at all. I drove home and told Liam's father, then my husband, and we cried together. This was the beginning of the end of our marriage and although I didn't know it yet it was the beginning of the end of me.

8 years later at a parent-teacher conference for my oldest son Jake, the teacher asked how I would feel about medicating my son. I looked up quickly, unable to fully process the question. " I think he may have ADHD and it is affecting his school work, he will not pass this grade if this continues." The discussion continued around me, I said I would look into it and left. The whole drive home I was confused. How could I have done this so wrong! How could I have 2 out of 3 kids with issues! How was this fair! I went home and googled ADHD. Thousands of hits. I tried all of the natural web sites, everything pointed to diet. I stared off into space and googled Autism diet. They were almost the same thing! This began a new phase of an 8 year journey. A journey to heal my kids and have them live their best life! Without the intervention of drugs! I immediately stared them both on the diet. Gluten-free, casein-free, dairy-free diet with immediate results! I began to blog the days out on my blog but it wasn't enough, I wanted to log each and every success, each and every thing that worked for our family and each and every mistake. The one thing that these kid's do not have on their side is time, you have to intervene now! So continues our journey...

The Introduction.

I have started this blog in addition to my other blog, so I have a place to talk about the issues and struggles that come along with parenting a child with special needs. I feel the Time Is Now is a place for Steph to be Steph and this blog is a place to be just that, My Kid's Mom.

At my house the job of "Mom" can also be described and nutritionist, dietitian, food-police, chauffeur, baker, inventor, investigator, therapist, interventionist, doctor, lawyer, nurse, counsellor mediator... Should I go on or are you tired? I have a son with Autism and a son with mild ADHD, the latter undiagnosed and the former diagnosed. I also have a typical child, a daughter. I work full time plus, I have my children on a gluten-free, casein free, dairy-free, sugar- free diet which means I make a lot of my own foods. I just stared the diet so I am just beginning to see the amazing results. I have a full plate with my children but I own each and every decision that I have made. I brought them into the world, I choose to work, I choose the diet and I choose our lifestyle. This is not a Woe-is-me Blog! I love the life I lead and I love the experiences that I have, this blog is simply to share them with you in a way that describes my life and how different it is from yours. Perhaps it isn't all that different at all, perhaps it will enable you to feel appreciation for your own life and healthy kids, or just a better understanding at what a Mom, such as myself has to deal with. I don't know, what I do know is I need a place to detail it out so I can look back later. This is my life.